May 15th: MPS Awareness Day

May 15th is International MPS Awareness Day. On this day, we remember all the children and adults who suffer from MPS and think about loved ones we have lost.  Please help raise awareness about these devastating diseases.  Wear purple to show your support.  Share our stories, our website and/or the video below to help raise awareness.  Thank you!

Special thanks to Cadette Girl Scout Troop #2279 from Prosper, Texas for producing this beautiful video.

Dancing with Dominic 2017


Dancing with Dominic is a family-friendly fundraising event that includes a silent auction, dinner, dancing, kids’ activities, and much much more. The goal is to raise awareness about Hunter Syndrome and raise funds for research. !!!!CLICK HERE TO BUY TICKETS!!!!

Dominic suffers with Hunter Syndrome, a rare progressive genetic condition affecting 1 in 150,000 males. There is currently NO CURE and without treatment the prognosis is that patients suffering from Hunter Syndrome will slowly lose all their skills and will not live past their teenage years. On January 31,2017, Dominic had surgery to remove and replace a catheter/port in his spine that delivers an investigational medicine to his brain. This surgery went well but a week later he had to be hospitalized because of a bacterial infection. Dominic was able to go home in late February and is recovering. You can send him get-well emails at

Come support and dance with Dominic on April 1st. Pre-sale tickets are $25 per adult or $45 per family. Children 12 years old and under are FREE with an adult ticket purchase. Tickets includes dinner (dessert and beverages too), kids’ activities, entertainment, and dancing with Dominic. The price will increase on March 26th. Dancing with Dominic 2017 will also include a silent auction.  !!!!CLICK HERE TO BUY TICKETS!!!!

Please read Dominic’s story at Event proceeds will be donated to “his” foundation, the Hunter Syndrome Foundation, a 501(c)3 non-profit corporation (IRS Tax ID# 46-4296623) with a mission to fund potential therapies that will ultimately find a cure for this disorder.